TY - JOUR
T1 - A review of linked health data in Australian nephrology
AU - Kotwal, Sradha
AU - Webster, Angela
AU - Cass, Alan
AU - Gallagher, Martin
PY - 2016
Y1 - 2016
N2 - Linked health data bring together data about one person from varying sources such as administrative health datasets, death registries and clinical registries using a process that maintains patient privacy. Linked health data have been used for burden of disease estimates and health-care planning and is being increasingly use as a research methodology to study health service utilisation and patient outcomes. Within Australian nephrology, there has been limited understanding and use of linked health data so far, but we expect that with the increasing availability of data and the growing complexity of health care, the use of such data will expand. This is especially pertinent for the growing elderly population with advanced kidney disease, who are poorly represented in other types of research studies. This article summarizes the history of linked health data in Australia, the nature of available datasets in Australia, the methods of access to these data, privacy and ethical issues, along with strengths, limitations and implications for the future.
AB - Linked health data bring together data about one person from varying sources such as administrative health datasets, death registries and clinical registries using a process that maintains patient privacy. Linked health data have been used for burden of disease estimates and health-care planning and is being increasingly use as a research methodology to study health service utilisation and patient outcomes. Within Australian nephrology, there has been limited understanding and use of linked health data so far, but we expect that with the increasing availability of data and the growing complexity of health care, the use of such data will expand. This is especially pertinent for the growing elderly population with advanced kidney disease, who are poorly represented in other types of research studies. This article summarizes the history of linked health data in Australia, the nature of available datasets in Australia, the methods of access to these data, privacy and ethical issues, along with strengths, limitations and implications for the future.
UR - http://www.scopus.com/inward/record.url?scp=84971277806&partnerID=8YFLogxK
U2 - 10.1111/nep.12721
DO - 10.1111/nep.12721
M3 - Review article
C2 - 26748448
SN - 1320-5358
VL - 21
SP - 457
EP - 466
JO - Nephrology
JF - Nephrology
IS - 6
ER -