A review of linked health data in Australian nephrology

Sradha Kotwal, Angela Webster, Alan Cass, Martin Gallagher

    Research output: Contribution to journalReview article

    Abstract

    Linked health data bring together data about one person from varying sources such as administrative health datasets, death registries and clinical registries using a process that maintains patient privacy. Linked health data have been used for burden of disease estimates and health-care planning and is being increasingly use as a research methodology to study health service utilisation and patient outcomes. Within Australian nephrology, there has been limited understanding and use of linked health data so far, but we expect that with the increasing availability of data and the growing complexity of health care, the use of such data will expand. This is especially pertinent for the growing elderly population with advanced kidney disease, who are poorly represented in other types of research studies. This article summarizes the history of linked health data in Australia, the nature of available datasets in Australia, the methods of access to these data, privacy and ethical issues, along with strengths, limitations and implications for the future.
    Original languageEnglish
    Pages (from-to)457-466
    Number of pages10
    JournalNephrology
    Volume21
    Issue number6
    DOIs
    Publication statusPublished - 2016

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