Abstract
These first Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) have been developed to inform the healthcare requirements for CoHD services and enable all Australian patients, families and carers impacted by CoHD (paediatric CoHD and adult congenital heart disease [ACHD]) to live their best and healthiest lives. The CoHD Standards are designed to provide the clarity and certainty required for healthcare services to deliver excellent, comprehensive, inclusive, and equitable CoHD care across Australia for patients, families and carers, and offer an iterative roadmap to the future of these services. The CoHD Standards provide a framework for excellent CoHD care, encompassing key requirements and expectations for whole-of-life, holistic and connected healthcare service delivery. The CoHD Standards should be implemented in health services in conjunction with the National Safety and Quality Health Service Standards developed by the Australian Commission on Safety and Quality in Health Care. All healthcare services should comply with the CoHD Standards, as well as working to their organisation's or jurisdiction's agreed clinical governance framework, to guide the implementation of structures and processes that support safe care.
| Original language | English |
|---|---|
| Pages (from-to) | 153-196 |
| Number of pages | 44 |
| Journal | Heart Lung and Circulation |
| Volume | 33 |
| Issue number | 2 |
| DOIs | |
| Publication status | Published - Feb 2024 |
Bibliographical note
Funding Information:The CoHD Standards Steering Committee would like to acknowledge the many people who contributed to developing the CoHD Standards, especially the members of the Advisory Committee and Working Groups for their commitment and contribution to the CoHD Standards (please refer to Appendices A and B for lists of members). Their ongoing dedication has been instrumental in creating standards that provide a framework to inform the development of quality service delivery that supports “living well” for those affected by CoHD. The CoHD Standards Steering Committee acknowledges the integral role of HeartKids Ltd as facilitators and contributors to the first Australian National Standards of Care for Childhood-onset Heart Disease. HeartKids Ltd, the only national not-for-profit organisation solely focused on supporting and advocating for all people impacted by childhood-onset heart disease, provided an important voice for all patients, families and carers across Australia. The authors declare no known competing interests. The Australian National Standards of Care for Childhood-onset Heart Disease (CoHD Standards) were developed from funding by the Australian Government.
Publisher Copyright:
© 2023 The Authors