Cancer support services - are they appropriate and accessible for Indigenous cancer patients in Queensland, Australia?

Lisa Whop, Gail Garvey, Kamalini Lokuge, K Mallitt, Patricia Valery

    Research output: Contribution to journalArticleResearchpeer-review

    Abstract

    Introduction: In Queensland, Australia, the incidence of cancer (all cancers combined) is 21% lower for Indigenous people compared with non-Indigenous people but mortality is 36% higher. Support services play an important role in helping cancer patients through their cancer journey. Indigenous cancer patients are likely to face greater unmet supportive care needs and more barriers to accessing cancer care and support. Other barriers include the higher proportion of Indigenous people who live remotely and in regional areas, a known difficulty for access to health services. This study describes the availability of cancer support services in Queensland for Indigenous patients and relevant location.

    Methods:
     Using a set criteria 121 services were selected from a pre-existing database (n=344) of cancer services. These services were invited to complete an online questionnaire. ArcGIS (www.esri.com/software/arcgis/index.html) was used to map the services’ location (using postcode) against Indigenous population by local government area. Services were classified as an ‘Indigenous’ or ‘Indigenous friendly’ service using set criteria.

    Results:
     Eighty-three services (73.6%) completed the questionnaire. Mapping revealed services are located where there are relatively low percentages of Indigenous people compared with the whole population. No ‘Indigenous-specific’ services were identified; however, 11 services (13%) were classed ‘Indigenous-friendly’. The primary support offered by these services was ‘information’. Fewer referrals were received from Indigenous liaison officers compared with other health professionals. Only 8.6% of services reported frequently having contact with an Indigenous organisation; however, 44.6% of services reported that their staff participated in cultural training. Services also identified barriers to access which may exist for Indigenous clientele, including no Indigenous staff and the costs involved in accessing the service, but were unable to address these issues due to restricted staff and funding capacity.

    Conclusion: 
    Further research into the best models for providing culturally appropriate cancer support services to Indigenous people is essential to ensure Indigenous patients are well supported throughout their cancer journey. Emphasis should be placed on providing support services where a high Indigenous population percentage resides to ensure support is maintained in rural and remote settings. Further efforts should be placed on relationships with Indigenous organisations and mainstream support services and encouraging referral from Indigenous liaison officers.
    Original languageEnglish
    Article number2018
    Pages (from-to)1-10
    Number of pages10
    JournalRural and Remote Health
    Volume12
    Issue number3
    Publication statusPublished - 2012

    Fingerprint

    Queensland
    cancer
    Neoplasms
    Population Groups
    Referral and Consultation
    Organizations
    Local Government
    Information Services
    staff
    Health Services
    Software
    Databases
    Costs and Cost Analysis
    questionnaire

    Cite this

    @article{e637a583676b471097b326bc401dedf4,
    title = "Cancer support services - are they appropriate and accessible for Indigenous cancer patients in Queensland, Australia?",
    abstract = "Introduction: In Queensland, Australia, the incidence of cancer (all cancers combined) is 21{\%} lower for Indigenous people compared with non-Indigenous people but mortality is 36{\%} higher. Support services play an important role in helping cancer patients through their cancer journey. Indigenous cancer patients are likely to face greater unmet supportive care needs and more barriers to accessing cancer care and support. Other barriers include the higher proportion of Indigenous people who live remotely and in regional areas, a known difficulty for access to health services. This study describes the availability of cancer support services in Queensland for Indigenous patients and relevant location.Methods: Using a set criteria 121 services were selected from a pre-existing database (n=344) of cancer services. These services were invited to complete an online questionnaire. ArcGIS (www.esri.com/software/arcgis/index.html) was used to map the services’ location (using postcode) against Indigenous population by local government area. Services were classified as an ‘Indigenous’ or ‘Indigenous friendly’ service using set criteria.Results: Eighty-three services (73.6{\%}) completed the questionnaire. Mapping revealed services are located where there are relatively low percentages of Indigenous people compared with the whole population. No ‘Indigenous-specific’ services were identified; however, 11 services (13{\%}) were classed ‘Indigenous-friendly’. The primary support offered by these services was ‘information’. Fewer referrals were received from Indigenous liaison officers compared with other health professionals. Only 8.6{\%} of services reported frequently having contact with an Indigenous organisation; however, 44.6{\%} of services reported that their staff participated in cultural training. Services also identified barriers to access which may exist for Indigenous clientele, including no Indigenous staff and the costs involved in accessing the service, but were unable to address these issues due to restricted staff and funding capacity.Conclusion: Further research into the best models for providing culturally appropriate cancer support services to Indigenous people is essential to ensure Indigenous patients are well supported throughout their cancer journey. Emphasis should be placed on providing support services where a high Indigenous population percentage resides to ensure support is maintained in rural and remote settings. Further efforts should be placed on relationships with Indigenous organisations and mainstream support services and encouraging referral from Indigenous liaison officers.",
    keywords = "administrative personnel, article, attitude to health, Australia, cancer center, comparative study, cross-sectional study, economics, ethnic and racial groups, financial management, health care delivery, health service, human, information service, manpower, methodology, neoplasm, online system, patient attitude, psychological aspect, questionnaire, residential care, social support, standard, statistics, utilization review, Administrative Personnel, Cancer Care Facilities, Catchment Area (Health), Cross-Sectional Studies, Delivery of Health Care, Financing, Government, Health Knowledge, Attitudes, Practice, Health Services Accessibility, Health Services, Indigenous, Humans, Information Services, Neoplasms, Online Systems, Patient Acceptance of Health Care, Population Groups, Queensland, Questionnaires, Social Support",
    author = "Lisa Whop and Gail Garvey and Kamalini Lokuge and K Mallitt and Patricia Valery",
    note = "NHMRC Grant No.: 1004643",
    year = "2012",
    language = "English",
    volume = "12",
    pages = "1--10",
    journal = "Rural and Remote Health",
    issn = "1445-6354",
    publisher = "Australian Rural Health Education Network",
    number = "3",

    }

    Cancer support services - are they appropriate and accessible for Indigenous cancer patients in Queensland, Australia? / Whop, Lisa; Garvey, Gail; Lokuge, Kamalini; Mallitt, K; Valery, Patricia .

    In: Rural and Remote Health, Vol. 12, No. 3, 2018, 2012, p. 1-10.

    Research output: Contribution to journalArticleResearchpeer-review

    TY - JOUR

    T1 - Cancer support services - are they appropriate and accessible for Indigenous cancer patients in Queensland, Australia?

    AU - Whop, Lisa

    AU - Garvey, Gail

    AU - Lokuge, Kamalini

    AU - Mallitt, K

    AU - Valery, Patricia

    N1 - NHMRC Grant No.: 1004643

    PY - 2012

    Y1 - 2012

    N2 - Introduction: In Queensland, Australia, the incidence of cancer (all cancers combined) is 21% lower for Indigenous people compared with non-Indigenous people but mortality is 36% higher. Support services play an important role in helping cancer patients through their cancer journey. Indigenous cancer patients are likely to face greater unmet supportive care needs and more barriers to accessing cancer care and support. Other barriers include the higher proportion of Indigenous people who live remotely and in regional areas, a known difficulty for access to health services. This study describes the availability of cancer support services in Queensland for Indigenous patients and relevant location.Methods: Using a set criteria 121 services were selected from a pre-existing database (n=344) of cancer services. These services were invited to complete an online questionnaire. ArcGIS (www.esri.com/software/arcgis/index.html) was used to map the services’ location (using postcode) against Indigenous population by local government area. Services were classified as an ‘Indigenous’ or ‘Indigenous friendly’ service using set criteria.Results: Eighty-three services (73.6%) completed the questionnaire. Mapping revealed services are located where there are relatively low percentages of Indigenous people compared with the whole population. No ‘Indigenous-specific’ services were identified; however, 11 services (13%) were classed ‘Indigenous-friendly’. The primary support offered by these services was ‘information’. Fewer referrals were received from Indigenous liaison officers compared with other health professionals. Only 8.6% of services reported frequently having contact with an Indigenous organisation; however, 44.6% of services reported that their staff participated in cultural training. Services also identified barriers to access which may exist for Indigenous clientele, including no Indigenous staff and the costs involved in accessing the service, but were unable to address these issues due to restricted staff and funding capacity.Conclusion: Further research into the best models for providing culturally appropriate cancer support services to Indigenous people is essential to ensure Indigenous patients are well supported throughout their cancer journey. Emphasis should be placed on providing support services where a high Indigenous population percentage resides to ensure support is maintained in rural and remote settings. Further efforts should be placed on relationships with Indigenous organisations and mainstream support services and encouraging referral from Indigenous liaison officers.

    AB - Introduction: In Queensland, Australia, the incidence of cancer (all cancers combined) is 21% lower for Indigenous people compared with non-Indigenous people but mortality is 36% higher. Support services play an important role in helping cancer patients through their cancer journey. Indigenous cancer patients are likely to face greater unmet supportive care needs and more barriers to accessing cancer care and support. Other barriers include the higher proportion of Indigenous people who live remotely and in regional areas, a known difficulty for access to health services. This study describes the availability of cancer support services in Queensland for Indigenous patients and relevant location.Methods: Using a set criteria 121 services were selected from a pre-existing database (n=344) of cancer services. These services were invited to complete an online questionnaire. ArcGIS (www.esri.com/software/arcgis/index.html) was used to map the services’ location (using postcode) against Indigenous population by local government area. Services were classified as an ‘Indigenous’ or ‘Indigenous friendly’ service using set criteria.Results: Eighty-three services (73.6%) completed the questionnaire. Mapping revealed services are located where there are relatively low percentages of Indigenous people compared with the whole population. No ‘Indigenous-specific’ services were identified; however, 11 services (13%) were classed ‘Indigenous-friendly’. The primary support offered by these services was ‘information’. Fewer referrals were received from Indigenous liaison officers compared with other health professionals. Only 8.6% of services reported frequently having contact with an Indigenous organisation; however, 44.6% of services reported that their staff participated in cultural training. Services also identified barriers to access which may exist for Indigenous clientele, including no Indigenous staff and the costs involved in accessing the service, but were unable to address these issues due to restricted staff and funding capacity.Conclusion: Further research into the best models for providing culturally appropriate cancer support services to Indigenous people is essential to ensure Indigenous patients are well supported throughout their cancer journey. Emphasis should be placed on providing support services where a high Indigenous population percentage resides to ensure support is maintained in rural and remote settings. Further efforts should be placed on relationships with Indigenous organisations and mainstream support services and encouraging referral from Indigenous liaison officers.

    KW - administrative personnel

    KW - article

    KW - attitude to health

    KW - Australia

    KW - cancer center

    KW - comparative study

    KW - cross-sectional study

    KW - economics

    KW - ethnic and racial groups

    KW - financial management

    KW - health care delivery

    KW - health service

    KW - human

    KW - information service

    KW - manpower

    KW - methodology

    KW - neoplasm

    KW - online system

    KW - patient attitude

    KW - psychological aspect

    KW - questionnaire

    KW - residential care

    KW - social support

    KW - standard

    KW - statistics

    KW - utilization review

    KW - Administrative Personnel

    KW - Cancer Care Facilities

    KW - Catchment Area (Health)

    KW - Cross-Sectional Studies

    KW - Delivery of Health Care

    KW - Financing, Government

    KW - Health Knowledge, Attitudes, Practice

    KW - Health Services Accessibility

    KW - Health Services, Indigenous

    KW - Humans

    KW - Information Services

    KW - Neoplasms

    KW - Online Systems

    KW - Patient Acceptance of Health Care

    KW - Population Groups

    KW - Queensland

    KW - Questionnaires

    KW - Social Support

    UR - http://www.scopus.com/inward/record.url?scp=84867594286&partnerID=8YFLogxK

    M3 - Article

    VL - 12

    SP - 1

    EP - 10

    JO - Rural and Remote Health

    JF - Rural and Remote Health

    SN - 1445-6354

    IS - 3

    M1 - 2018

    ER -