Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis

Anne B. Chang; Jeanette Boyd; Andrew Bush; Keith Grimwood; Adam T. Hill; Zena Powell; Stephanie Yerkovich; Angela Zacharasiewicz; Ahmad Kantar; Efthymia Alexopoulou; Leanne Bell; James D. Chalmers; Andrew Collaro; Carolina Constant; Kostas Douros; Rebecca Fortescue; Matthias Griese; Jonathan Grigg; Andreas Hector; Bulent Karadag; Oleksandr Mazulov; Fabio Midulla; Alexander Möller; Marijke Proesmans; Christine Wilson

doi:10.1183/13993003.01657-2021

Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis

Anne B. Chang, Jeanette Boyd, Andrew Bush, Keith Grimwood, Adam T. Hill, Zena Powell, Stephanie Yerkovich, Angela Zacharasiewicz, Ahmad Kantar, Efthymia Alexopoulou, Leanne Bell, James D. Chalmers, Andrew Collaro, Carolina Constant, Kostas Douros, Rebecca Fortescue, Matthias Griese, Jonathan Grigg, Andreas Hector, Bulent KaradagOleksandr Mazulov, Fabio Midulla, Alexander Möller, Marijke Proesmans, Christine Wilson

Research output: Contribution to journal › Review article › peer-review

14 Citations (Scopus)

Abstract

Child-BEAR-Net will create vital infrastructure to progress education, advocacy and research collaboration in paediatric bronchiectasis (see www.improveBE.org). With the ELF and parent advisory group, our initial planned projects respond to identified needs and complement the ERS paediatric bronchiectasis CPG [5]. Our CRC will advance bronchiectasis by raising awareness and encouraging an evidence-based approach to diagnosis and management. In doing so, this will improve the lives of the many children at risk of, or affected by, bronchiectasis.

Original language	English
Article number	2101657
Pages (from-to)	1-5
Number of pages	5
Journal	European Respiratory Journal
Volume	58
Issue number	4
DOIs	https://doi.org/10.1183/13993003.01657-2021
Publication status	Published - 1 Oct 2021

Bibliographical note

Funding Information:
Conflict of interest: A.B. Chang reports grants from National Health and Medical Research Council, Australia (NHMRC) during the conduct of the study; and that they are an independent data monitoring committee member for an unlicensed vaccine (GlaxoSmithKline), and advisory member of study design for unlicensed molecule for chronic cough (Merck), and an independent data monitoring committee member for a COVID-19 vaccine for children (Moderna), outside the submitted work. J. Boyd is an employee of the European Lung Foundation. A. Bush has nothing to disclose. K. Grimwood reports grants from National Health and Medical Research Council, Australia (NHMRC), during the conduct of the study. A.T. Hill has nothing to disclose. Z. Powell has nothing to declare. S. Yerkovich has nothing to disclose. A. Zacharasiewicz has nothing to disclose. A. Kantar has nothing to disclose.

Publisher Copyright:
© The authors 2021

Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.

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10.1183/13993003.01657-2021

Cite this

Chang, A. B., Boyd, J., Bush, A., Grimwood, K., Hill, A. T., Powell, Z., Yerkovich, S., Zacharasiewicz, A., Kantar, A., Alexopoulou, E., Bell, L., Chalmers, J. D., Collaro, A., Constant, C., Douros, K., Fortescue, R., Griese, M., Grigg, J., Hector, A., ... Wilson, C. (2021). Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis. European Respiratory Journal, 58(4), 1-5. Article 2101657. https://doi.org/10.1183/13993003.01657-2021

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title = "Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis",

abstract = "Child-BEAR-Net will create vital infrastructure to progress education, advocacy and research collaboration in paediatric bronchiectasis (see www.improveBE.org). With the ELF and parent advisory group, our initial planned projects respond to identified needs and complement the ERS paediatric bronchiectasis CPG [5]. Our CRC will advance bronchiectasis by raising awareness and encouraging an evidence-based approach to diagnosis and management. In doing so, this will improve the lives of the many children at risk of, or affected by, bronchiectasis.",

author = "Chang, {Anne B.} and Jeanette Boyd and Andrew Bush and Keith Grimwood and Hill, {Adam T.} and Zena Powell and Stephanie Yerkovich and Angela Zacharasiewicz and Ahmad Kantar and Efthymia Alexopoulou and Leanne Bell and Chalmers, {James D.} and Andrew Collaro and Carolina Constant and Kostas Douros and Rebecca Fortescue and Matthias Griese and Jonathan Grigg and Andreas Hector and Bulent Karadag and Oleksandr Mazulov and Fabio Midulla and Alexander M{\"o}ller and Marijke Proesmans and Christine Wilson",

note = "Funding Information: Conflict of interest: A.B. Chang reports grants from National Health and Medical Research Council, Australia (NHMRC) during the conduct of the study; and that they are an independent data monitoring committee member for an unlicensed vaccine (GlaxoSmithKline), and advisory member of study design for unlicensed molecule for chronic cough (Merck), and an independent data monitoring committee member for a COVID-19 vaccine for children (Moderna), outside the submitted work. J. Boyd is an employee of the European Lung Foundation. A. Bush has nothing to disclose. K. Grimwood reports grants from National Health and Medical Research Council, Australia (NHMRC), during the conduct of the study. A.T. Hill has nothing to disclose. Z. Powell has nothing to declare. S. Yerkovich has nothing to disclose. A. Zacharasiewicz has nothing to disclose. A. Kantar has nothing to disclose. Publisher Copyright: {\textcopyright} The authors 2021 Copyright: Copyright 2021 Elsevier B.V., All rights reserved.",

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Chang, AB, Boyd, J, Bush, A, Grimwood, K, Hill, AT, Powell, Z, Yerkovich, S, Zacharasiewicz, A, Kantar, A, Alexopoulou, E, Bell, L, Chalmers, JD, Collaro, A, Constant, C, Douros, K, Fortescue, R, Griese, M, Grigg, J, Hector, A, Karadag, B, Mazulov, O, Midulla, F, Möller, A, Proesmans, M & Wilson, C 2021, 'Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis', European Respiratory Journal, vol. 58, no. 4, 2101657, pp. 1-5. https://doi.org/10.1183/13993003.01657-2021

Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis. / Chang, Anne B.; Boyd, Jeanette; Bush, Andrew et al.
In: European Respiratory Journal, Vol. 58, No. 4, 2101657, 01.10.2021, p. 1-5.

Research output: Contribution to journal › Review article › peer-review

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T1 - Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net)

T2 - An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis

AU - Chang, Anne B.

AU - Boyd, Jeanette

AU - Bush, Andrew

AU - Grimwood, Keith

AU - Hill, Adam T.

AU - Powell, Zena

AU - Yerkovich, Stephanie

AU - Zacharasiewicz, Angela

AU - Kantar, Ahmad

AU - Alexopoulou, Efthymia

AU - Bell, Leanne

AU - Chalmers, James D.

AU - Collaro, Andrew

AU - Constant, Carolina

AU - Douros, Kostas

AU - Fortescue, Rebecca

AU - Griese, Matthias

AU - Grigg, Jonathan

AU - Hector, Andreas

AU - Karadag, Bulent

AU - Mazulov, Oleksandr

AU - Midulla, Fabio

AU - Möller, Alexander

AU - Proesmans, Marijke

AU - Wilson, Christine

N1 - Funding Information: Conflict of interest: A.B. Chang reports grants from National Health and Medical Research Council, Australia (NHMRC) during the conduct of the study; and that they are an independent data monitoring committee member for an unlicensed vaccine (GlaxoSmithKline), and advisory member of study design for unlicensed molecule for chronic cough (Merck), and an independent data monitoring committee member for a COVID-19 vaccine for children (Moderna), outside the submitted work. J. Boyd is an employee of the European Lung Foundation. A. Bush has nothing to disclose. K. Grimwood reports grants from National Health and Medical Research Council, Australia (NHMRC), during the conduct of the study. A.T. Hill has nothing to disclose. Z. Powell has nothing to declare. S. Yerkovich has nothing to disclose. A. Zacharasiewicz has nothing to disclose. A. Kantar has nothing to disclose. Publisher Copyright: © The authors 2021 Copyright: Copyright 2021 Elsevier B.V., All rights reserved.

PY - 2021/10/1

Y1 - 2021/10/1

N2 - Child-BEAR-Net will create vital infrastructure to progress education, advocacy and research collaboration in paediatric bronchiectasis (see www.improveBE.org). With the ELF and parent advisory group, our initial planned projects respond to identified needs and complement the ERS paediatric bronchiectasis CPG [5]. Our CRC will advance bronchiectasis by raising awareness and encouraging an evidence-based approach to diagnosis and management. In doing so, this will improve the lives of the many children at risk of, or affected by, bronchiectasis.

AB - Child-BEAR-Net will create vital infrastructure to progress education, advocacy and research collaboration in paediatric bronchiectasis (see www.improveBE.org). With the ELF and parent advisory group, our initial planned projects respond to identified needs and complement the ERS paediatric bronchiectasis CPG [5]. Our CRC will advance bronchiectasis by raising awareness and encouraging an evidence-based approach to diagnosis and management. In doing so, this will improve the lives of the many children at risk of, or affected by, bronchiectasis.

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U2 - 10.1183/13993003.01657-2021

DO - 10.1183/13993003.01657-2021

M3 - Review article

C2 - 34675034

AN - SCOPUS:85120581920

SN - 0903-1936

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M1 - 2101657

ER -

Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis

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