Children's Bronchiectasis Education Advocacy and Research Network (Child-BEAR-Net): An ERS Clinical Research Collaboration on improving outcomes of children and adolescents with bronchiectasis

Anne B. Chang, Jeanette Boyd, Andrew Bush, Keith Grimwood, Adam T. Hill, Zena Powell, Stephanie Yerkovich, Angela Zacharasiewicz, Ahmad Kantar, Efthymia Alexopoulou, Leanne Bell, James D. Chalmers, Andrew Collaro, Carolina Constant, Kostas Douros, Rebecca Fortescue, Matthias Griese, Jonathan Grigg, Andreas Hector, Bulent KaradagOleksandr Mazulov, Fabio Midulla, Alexander Möller, Marijke Proesmans, Christine Wilson

    Research output: Contribution to journalReview articlepeer-review

    12 Citations (Scopus)

    Abstract

    Child-BEAR-Net will create vital infrastructure to progress education, advocacy and research collaboration in paediatric bronchiectasis (see www.improveBE.org). With the ELF and parent advisory group, our initial planned projects respond to identified needs and complement the ERS paediatric bronchiectasis CPG [5]. Our CRC will advance bronchiectasis by raising awareness and encouraging an evidence-based approach to diagnosis and management. In doing so, this will improve the lives of the many children at risk of, or affected by, bronchiectasis.

    Original languageEnglish
    Article number2101657
    Pages (from-to)1-5
    Number of pages5
    JournalEuropean Respiratory Journal
    Volume58
    Issue number4
    DOIs
    Publication statusPublished - 1 Oct 2021

    Bibliographical note

    Funding Information:
    Conflict of interest: A.B. Chang reports grants from National Health and Medical Research Council, Australia (NHMRC) during the conduct of the study; and that they are an independent data monitoring committee member for an unlicensed vaccine (GlaxoSmithKline), and advisory member of study design for unlicensed molecule for chronic cough (Merck), and an independent data monitoring committee member for a COVID-19 vaccine for children (Moderna), outside the submitted work. J. Boyd is an employee of the European Lung Foundation. A. Bush has nothing to disclose. K. Grimwood reports grants from National Health and Medical Research Council, Australia (NHMRC), during the conduct of the study. A.T. Hill has nothing to disclose. Z. Powell has nothing to declare. S. Yerkovich has nothing to disclose. A. Zacharasiewicz has nothing to disclose. A. Kantar has nothing to disclose.

    Publisher Copyright:
    © The authors 2021

    Copyright:
    Copyright 2021 Elsevier B.V., All rights reserved.

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