Collaborating with consumer and community representatives in health and medical research in Australia

Results from an evaluation

Janet Payne, Heather D'Antoine, Kathryn France, Anne McKenzie, Nadine Henley, Anne Bartu, Elizabeth Elliott, Carol Bower

    Research output: Contribution to journalArticleResearchpeer-review

    Abstract

    Objective: To collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 http://www.ichr.uwa.edu.au/alcoholandpregnancy webcite and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.

    Methods: We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.

    Results: Fifteen researchers (93.8%) and seven (53.8%) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.

    Conclusions: Consumer and community participation is an essential component of good research practice and contributed to the Alcohol and Pregnancy Project by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.
    Original languageEnglish
    Pages (from-to)1-14
    Number of pages14
    JournalHealth Research Policy and Systems
    Volume9
    DOIs
    Publication statusPublished - 2011

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    Biomedical Research
    Health
    Research Personnel
    Research
    Community Participation
    Alcohols
    Illegitimacy
    Pregnancy
    Process Assessment (Health Care)

    Cite this

    Payne, Janet ; D'Antoine, Heather ; France, Kathryn ; McKenzie, Anne ; Henley, Nadine ; Bartu, Anne ; Elliott, Elizabeth ; Bower, Carol. / Collaborating with consumer and community representatives in health and medical research in Australia : Results from an evaluation. In: Health Research Policy and Systems. 2011 ; Vol. 9. pp. 1-14.
    @article{cbd4a3e9ea8545098ebb178062a84795,
    title = "Collaborating with consumer and community representatives in health and medical research in Australia: Results from an evaluation",
    abstract = "Objective: To collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 http://www.ichr.uwa.edu.au/alcoholandpregnancy webcite and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.Methods: We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.Results: Fifteen researchers (93.8{\%}) and seven (53.8{\%}) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.Conclusions: Consumer and community participation is an essential component of good research practice and contributed to the Alcohol and Pregnancy Project by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.",
    author = "Janet Payne and Heather D'Antoine and Kathryn France and Anne McKenzie and Nadine Henley and Anne Bartu and Elizabeth Elliott and Carol Bower",
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    Collaborating with consumer and community representatives in health and medical research in Australia : Results from an evaluation. / Payne, Janet; D'Antoine, Heather; France, Kathryn; McKenzie, Anne; Henley, Nadine; Bartu, Anne; Elliott, Elizabeth; Bower, Carol.

    In: Health Research Policy and Systems, Vol. 9, 2011, p. 1-14.

    Research output: Contribution to journalArticleResearchpeer-review

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    T1 - Collaborating with consumer and community representatives in health and medical research in Australia

    T2 - Results from an evaluation

    AU - Payne, Janet

    AU - D'Antoine, Heather

    AU - France, Kathryn

    AU - McKenzie, Anne

    AU - Henley, Nadine

    AU - Bartu, Anne

    AU - Elliott, Elizabeth

    AU - Bower, Carol

    PY - 2011

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    N2 - Objective: To collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 http://www.ichr.uwa.edu.au/alcoholandpregnancy webcite and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.Methods: We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.Results: Fifteen researchers (93.8%) and seven (53.8%) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.Conclusions: Consumer and community participation is an essential component of good research practice and contributed to the Alcohol and Pregnancy Project by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.

    AB - Objective: To collaborate with consumer and community representatives in the Alcohol and Pregnancy Project from 2006-2008 http://www.ichr.uwa.edu.au/alcoholandpregnancy webcite and evaluate researchers' and consumer and community representatives' perceptions of the process, context and impact of consumer and community participation in the project.Methods: We formed two reference groups and sought consumer and community representatives' perspectives on all aspects of the project over a three year period. We developed an evaluation framework and asked consumer and community representatives and researchers to complete a self-administered questionnaire at the end of the project.Results: Fifteen researchers (93.8%) and seven (53.8%) consumer and community representatives completed a questionnaire. Most consumer and community representatives agreed that the process and context measures of their participation had been achieved. Both researchers and consumer and community representatives identified areas for improvement and offered suggestions how these could be improved for future research. Researchers thought consumer and community participation contributed to project outputs and outcomes by enhancing scientific and ethical standards, providing legitimacy and authority, and increasing the project's credibility and participation. They saw it was fundamental to the research process and acknowledged consumer and community representatives for their excellent contribution. Consumer and community representatives were able to directly influence decisions about the research. They thought that consumer and community participation had significant influence on the success of project outputs and outcomes.Conclusions: Consumer and community participation is an essential component of good research practice and contributed to the Alcohol and Pregnancy Project by enhancing research processes, outputs and outcomes, and this participation was valued by community and consumer representatives and researchers. The National Health and Medical Research Council in Australia expects researchers to work in partnership and involve consumer and community representatives in health and medical research, and to evaluate community and consumer participation. It is important to demonstrate whether consumer and community participation makes a difference to health and medical research.

    U2 - 10.1186/1478-4505-9-18

    DO - 10.1186/1478-4505-9-18

    M3 - Article

    VL - 9

    SP - 1

    EP - 14

    JO - Health Research Policy and Systems

    JF - Health Research Policy and Systems

    SN - 1478-4505

    ER -