Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland

Evaluation of the ‘On track watch’ project

Emma Haynes, Minitja Marawili, Brendan Makungun Marika, Alice G. Mitchell, Jodi Phillips, Dawn Bessarab, Roz Walker, Jeff Cook, Anna P. Ralph

    Research output: Contribution to journalArticleResearchpeer-review

    Abstract

    Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.

    Original languageEnglish
    Pages (from-to)38-53
    Number of pages16
    JournalEvaluation and Program Planning
    Volume74
    Issue numberJune
    Early online date18 Feb 2019
    DOIs
    Publication statusPublished - 1 Jun 2019

    Fingerprint

    Community-Based Participatory Research
    Rheumatic Heart Disease
    action research
    Health Services Research
    cardiovascular disease
    heart disease
    Homelands
    evaluation
    community
    empowerment
    learning
    Learning
    Disease Eradication
    Streptococcal Infections
    Metaphor
    indigenous population
    Ownership
    traditional knowledge
    Focus Groups
    Research

    Cite this

    Haynes, Emma ; Marawili, Minitja ; Marika, Brendan Makungun ; Mitchell, Alice G. ; Phillips, Jodi ; Bessarab, Dawn ; Walker, Roz ; Cook, Jeff ; Ralph, Anna P. / Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland : Evaluation of the ‘On track watch’ project. In: Evaluation and Program Planning. 2019 ; Vol. 74, No. June. pp. 38-53.
    @article{b16a8371fd3542dab2d8619506181139,
    title = "Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland: Evaluation of the ‘On track watch’ project",
    abstract = "Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.",
    keywords = "Aboriginal health inequity, Australian Aboriginal, Co-design, Community-based participatory action research, Empowerment, Health systems, Indigenous, Knowledge exchange, Reciprocal knowledge co-creation, Rheumatic heart disease",
    author = "Emma Haynes and Minitja Marawili and Marika, {Brendan Makungun} and Mitchell, {Alice G.} and Jodi Phillips and Dawn Bessarab and Roz Walker and Jeff Cook and Ralph, {Anna P.}",
    year = "2019",
    month = "6",
    day = "1",
    doi = "10.1016/j.evalprogplan.2019.02.010",
    language = "English",
    volume = "74",
    pages = "38--53",
    journal = "Evaluation and Program Planning",
    issn = "0149-7189",
    publisher = "Unknown",
    number = "June",

    }

    Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland : Evaluation of the ‘On track watch’ project. / Haynes, Emma; Marawili, Minitja; Marika, Brendan Makungun; Mitchell, Alice G.; Phillips, Jodi; Bessarab, Dawn; Walker, Roz; Cook, Jeff; Ralph, Anna P.

    In: Evaluation and Program Planning, Vol. 74, No. June, 01.06.2019, p. 38-53.

    Research output: Contribution to journalArticleResearchpeer-review

    TY - JOUR

    T1 - Community-based participatory action research on rheumatic heart disease in an Australian Aboriginal homeland

    T2 - Evaluation of the ‘On track watch’ project

    AU - Haynes, Emma

    AU - Marawili, Minitja

    AU - Marika, Brendan Makungun

    AU - Mitchell, Alice G.

    AU - Phillips, Jodi

    AU - Bessarab, Dawn

    AU - Walker, Roz

    AU - Cook, Jeff

    AU - Ralph, Anna P.

    PY - 2019/6/1

    Y1 - 2019/6/1

    N2 - Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.

    AB - Strategies to date have been ineffective in reducing high rates of rheumatic heart disease (RHD) in Australian Aboriginal people; a disease caused by streptococcal infections. A remote Aboriginal community initiated a collaboration to work towards elimination of RHD. Based in ‘both-way learning’ (reciprocal knowledge co-creation), the aim of this study was to co-design, implement and evaluate community-based participatory action research (CBPAR) to achieve this vision. Activities related to understanding and addressing RHD social determinants were delivered through an accredited course adapted to meet learner and project needs. Theory-driven evaluation linking CBPAR to empowerment was applied. Data collection comprised focus groups, interviews, observation, and co-development and use of measurement tools such as surveys. Data analysis utilised process indicators from national guidelines for Aboriginal health research, and outcome indicators derived from the Wallerstein framework. Findings include the importance of valuing traditional knowledges and ways of learning such as locally-meaningful metaphors to explore unfamiliar concepts; empowerment through critical thinking and community ownership of knowledge about RHD and research; providing practical guidance in implementing empowering and decolonising principles / theories. Lessons learned are applicable to next stages of the RHD elimination strategy which must include scale-up of community leadership in research agenda-setting and implementation.

    KW - Aboriginal health inequity

    KW - Australian Aboriginal

    KW - Co-design

    KW - Community-based participatory action research

    KW - Empowerment

    KW - Health systems

    KW - Indigenous

    KW - Knowledge exchange

    KW - Reciprocal knowledge co-creation

    KW - Rheumatic heart disease

    UR - http://www.scopus.com/inward/record.url?scp=85062419438&partnerID=8YFLogxK

    U2 - 10.1016/j.evalprogplan.2019.02.010

    DO - 10.1016/j.evalprogplan.2019.02.010

    M3 - Article

    VL - 74

    SP - 38

    EP - 53

    JO - Evaluation and Program Planning

    JF - Evaluation and Program Planning

    SN - 0149-7189

    IS - June

    ER -