'Gotta be sit down and worked out together'

Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians

K. Smith, L. Flicker, G. Shadforth, E. Carroll, N. Ralph, D. Atkinson, M. Lindeman, F. Schaper, N. T. Lautenschlager, D. Logiudice

    Research output: Contribution to journalArticleResearchpeer-review

    Abstract

    Introduction: Dementia is five-fold more prevalent among Aboriginal than non-Aboriginal Australians. Despite this, the quality of care available to people living with dementia in remote Aboriginal communities is poor. The objective of this study was to determine ways to overcome factors affecting the successful delivery of services to Aboriginal people with dementia living in remote communities, and to their families and communities 

    Methods: This qualitative research took place in the Kimberley Region of Western Australia. Data collection occurred in three stages: (1) interviews with service providers to identify the services available; (2) interviews with the caregivers of Aboriginal people living with dementia and community-based care workers; and (3) focus groups with community representatives and community care staff. Each stage was concluded when no new themes emerged. At each stage the transcribed information was analysed and joint interpretation identified common themes. 

    Results: In total, 42 service providers, 31 caregivers and community-based care workers were interviewed and 3 focus groups were conducted. Obstacles to accessing quality care were mentioned and recommendations on ways to improve care were made. The key themes that emerged were caregiver role, perspectives of dementia, community and culturally-appropriate care, workforce, education and training, issues affecting remote communities and service issues. Detailed information on how each theme affects the successful delivery of dementia care is provided. 

    Conclusions: These research findings indicate that people living with dementia and their caregivers in remote Aboriginal communities are struggling to cope. They are requesting and require better community care. Implementing a culturally safe model of dementia care for remote Aboriginal communities that encompasses the recommendations made and builds on the strengths of the communities could potentially deliver the required improvements to dementia care for this population.

    Original languageEnglish
    Article number1650
    Pages (from-to)1-14
    Number of pages14
    JournalRural and Remote Health
    Volume11
    Issue number2
    Publication statusPublished - Apr 2011

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    dementia
    Caregivers
    service provider
    caregiver
    Dementia
    community
    Quality of Health Care
    Focus Groups
    Interviews
    Western Australia
    worker
    Social Welfare
    Qualitative Research
    interview
    qualitative research
    Joints
    Group
    Education
    staff
    interpretation

    Cite this

    Smith, K., Flicker, L., Shadforth, G., Carroll, E., Ralph, N., Atkinson, D., ... Logiudice, D. (2011). 'Gotta be sit down and worked out together': Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians. Rural and Remote Health, 11(2), 1-14. [1650].
    Smith, K. ; Flicker, L. ; Shadforth, G. ; Carroll, E. ; Ralph, N. ; Atkinson, D. ; Lindeman, M. ; Schaper, F. ; Lautenschlager, N. T. ; Logiudice, D. / 'Gotta be sit down and worked out together' : Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians. In: Rural and Remote Health. 2011 ; Vol. 11, No. 2. pp. 1-14.
    @article{c6e3c18614724194817afac5b5e8b546,
    title = "'Gotta be sit down and worked out together': Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians",
    abstract = "Introduction: Dementia is five-fold more prevalent among Aboriginal than non-Aboriginal Australians. Despite this, the quality of care available to people living with dementia in remote Aboriginal communities is poor. The objective of this study was to determine ways to overcome factors affecting the successful delivery of services to Aboriginal people with dementia living in remote communities, and to their families and communities Methods: This qualitative research took place in the Kimberley Region of Western Australia. Data collection occurred in three stages: (1) interviews with service providers to identify the services available; (2) interviews with the caregivers of Aboriginal people living with dementia and community-based care workers; and (3) focus groups with community representatives and community care staff. Each stage was concluded when no new themes emerged. At each stage the transcribed information was analysed and joint interpretation identified common themes. Results: In total, 42 service providers, 31 caregivers and community-based care workers were interviewed and 3 focus groups were conducted. Obstacles to accessing quality care were mentioned and recommendations on ways to improve care were made. The key themes that emerged were caregiver role, perspectives of dementia, community and culturally-appropriate care, workforce, education and training, issues affecting remote communities and service issues. Detailed information on how each theme affects the successful delivery of dementia care is provided. Conclusions: These research findings indicate that people living with dementia and their caregivers in remote Aboriginal communities are struggling to cope. They are requesting and require better community care. Implementing a culturally safe model of dementia care for remote Aboriginal communities that encompasses the recommendations made and builds on the strengths of the communities could potentially deliver the required improvements to dementia care for this population.",
    keywords = "Aboriginal, Australia, Caregivers, Community care, Dementia, Indigenous",
    author = "K. Smith and L. Flicker and G. Shadforth and E. Carroll and N. Ralph and D. Atkinson and M. Lindeman and F. Schaper and Lautenschlager, {N. T.} and D. Logiudice",
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    Smith, K, Flicker, L, Shadforth, G, Carroll, E, Ralph, N, Atkinson, D, Lindeman, M, Schaper, F, Lautenschlager, NT & Logiudice, D 2011, ''Gotta be sit down and worked out together': Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians', Rural and Remote Health, vol. 11, no. 2, 1650, pp. 1-14.

    'Gotta be sit down and worked out together' : Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians. / Smith, K.; Flicker, L.; Shadforth, G.; Carroll, E.; Ralph, N.; Atkinson, D.; Lindeman, M.; Schaper, F.; Lautenschlager, N. T.; Logiudice, D.

    In: Rural and Remote Health, Vol. 11, No. 2, 1650, 04.2011, p. 1-14.

    Research output: Contribution to journalArticleResearchpeer-review

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    T2 - Views of aboriginal caregivers and service providers on ways to improve dementia care for aboriginal Australians

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    AU - Flicker, L.

    AU - Shadforth, G.

    AU - Carroll, E.

    AU - Ralph, N.

    AU - Atkinson, D.

    AU - Lindeman, M.

    AU - Schaper, F.

    AU - Lautenschlager, N. T.

    AU - Logiudice, D.

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    N2 - Introduction: Dementia is five-fold more prevalent among Aboriginal than non-Aboriginal Australians. Despite this, the quality of care available to people living with dementia in remote Aboriginal communities is poor. The objective of this study was to determine ways to overcome factors affecting the successful delivery of services to Aboriginal people with dementia living in remote communities, and to their families and communities Methods: This qualitative research took place in the Kimberley Region of Western Australia. Data collection occurred in three stages: (1) interviews with service providers to identify the services available; (2) interviews with the caregivers of Aboriginal people living with dementia and community-based care workers; and (3) focus groups with community representatives and community care staff. Each stage was concluded when no new themes emerged. At each stage the transcribed information was analysed and joint interpretation identified common themes. Results: In total, 42 service providers, 31 caregivers and community-based care workers were interviewed and 3 focus groups were conducted. Obstacles to accessing quality care were mentioned and recommendations on ways to improve care were made. The key themes that emerged were caregiver role, perspectives of dementia, community and culturally-appropriate care, workforce, education and training, issues affecting remote communities and service issues. Detailed information on how each theme affects the successful delivery of dementia care is provided. Conclusions: These research findings indicate that people living with dementia and their caregivers in remote Aboriginal communities are struggling to cope. They are requesting and require better community care. Implementing a culturally safe model of dementia care for remote Aboriginal communities that encompasses the recommendations made and builds on the strengths of the communities could potentially deliver the required improvements to dementia care for this population.

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