Incorporating indigenous knowledge in health services

a consumer partnership framework

Renae Kirkham, Louise Maple-Brown, Natasha Freeman, Barbara Beaton, R. Lamilami, M. Hausin, A.-M. Puruntatemeri, Pamela Wood, Selina Signal, Sandawana William Majoni, Alan Cass, Jaqui Hughes

    Research output: Contribution to journalArticleResearchpeer-review

    Abstract

    Objectives: Healthcare policy and planning should be informed by a partnership between healthcare services and healthcare users. This is critical for people who access care frequently such as indigenous Australians who have a high burden of chronic kidney disease. This study aimed to explore the most appropriate ways of enhancing services by incorporating renal patients' expectations and satisfaction of care in Australia's Northern Territory.

    Study design: This is a participatory action research.

    Methods: Six aboriginal health users with end-stage kidney disease were recruited to form an Indigenous Reference Group. This group met bimonthly between April and November 2017 and meetings took the same structure as a focus group. Findings from these meetings were presented to health policy and planners in a feedback loop implemented by the study.

    Results: This framework enabled indigenous knowledge to guide the project, indigenous priorities to be identified in this context and timely feedback of information to inform the strengths and priorities of the health service. Changes were recognised and addressed immediately.

    Conclusions: This qualitative research framework is a useful mechanism for providing local data to inform patient-centred health system change as expressed by health users. We recommend this consumer partnership framework be embedded into existing operational structures to support the ongoing sustainability of this group.
    Original languageEnglish
    Pages (from-to)1-4
    Number of pages4
    JournalJournal of Public Health
    Early online date24 Oct 2018
    DOIs
    Publication statusE-pub ahead of print - 24 Oct 2018

    Fingerprint

    Health Services
    Delivery of Health Care
    Health
    Northern Territory
    Qualitative Research
    Health Services Research
    Health Policy
    Focus Groups
    Patient Satisfaction
    Chronic Renal Insufficiency
    Chronic Kidney Failure
    Kidney

    Cite this

    Kirkham, Renae ; Maple-Brown, Louise ; Freeman, Natasha ; Beaton, Barbara ; Lamilami, R. ; Hausin, M. ; Puruntatemeri, A.-M. ; Wood, Pamela ; Signal, Selina ; Majoni, Sandawana William ; Cass, Alan ; Hughes, Jaqui. / Incorporating indigenous knowledge in health services : a consumer partnership framework. In: Journal of Public Health. 2018 ; pp. 1-4.
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    abstract = "Objectives: Healthcare policy and planning should be informed by a partnership between healthcare services and healthcare users. This is critical for people who access care frequently such as indigenous Australians who have a high burden of chronic kidney disease. This study aimed to explore the most appropriate ways of enhancing services by incorporating renal patients' expectations and satisfaction of care in Australia's Northern Territory.Study design: This is a participatory action research.Methods: Six aboriginal health users with end-stage kidney disease were recruited to form an Indigenous Reference Group. This group met bimonthly between April and November 2017 and meetings took the same structure as a focus group. Findings from these meetings were presented to health policy and planners in a feedback loop implemented by the study.Results: This framework enabled indigenous knowledge to guide the project, indigenous priorities to be identified in this context and timely feedback of information to inform the strengths and priorities of the health service. Changes were recognised and addressed immediately.Conclusions: This qualitative research framework is a useful mechanism for providing local data to inform patient-centred health system change as expressed by health users. We recommend this consumer partnership framework be embedded into existing operational structures to support the ongoing sustainability of this group.",
    author = "Renae Kirkham and Louise Maple-Brown and Natasha Freeman and Barbara Beaton and R. Lamilami and M. Hausin and A.-M. Puruntatemeri and Pamela Wood and Selina Signal and Majoni, {Sandawana William} and Alan Cass and Jaqui Hughes",
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    Incorporating indigenous knowledge in health services : a consumer partnership framework. / Kirkham, Renae; Maple-Brown, Louise; Freeman, Natasha; Beaton, Barbara; Lamilami, R. ; Hausin, M. ; Puruntatemeri, A.-M. ; Wood, Pamela; Signal, Selina; Majoni, Sandawana William; Cass, Alan; Hughes, Jaqui.

    In: Journal of Public Health, 24.10.2018, p. 1-4.

    Research output: Contribution to journalArticleResearchpeer-review

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    AU - Maple-Brown, Louise

    AU - Freeman, Natasha

    AU - Beaton, Barbara

    AU - Lamilami, R.

    AU - Hausin, M.

    AU - Puruntatemeri, A.-M.

    AU - Wood, Pamela

    AU - Signal, Selina

    AU - Majoni, Sandawana William

    AU - Cass, Alan

    AU - Hughes, Jaqui

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    N2 - Objectives: Healthcare policy and planning should be informed by a partnership between healthcare services and healthcare users. This is critical for people who access care frequently such as indigenous Australians who have a high burden of chronic kidney disease. This study aimed to explore the most appropriate ways of enhancing services by incorporating renal patients' expectations and satisfaction of care in Australia's Northern Territory.Study design: This is a participatory action research.Methods: Six aboriginal health users with end-stage kidney disease were recruited to form an Indigenous Reference Group. This group met bimonthly between April and November 2017 and meetings took the same structure as a focus group. Findings from these meetings were presented to health policy and planners in a feedback loop implemented by the study.Results: This framework enabled indigenous knowledge to guide the project, indigenous priorities to be identified in this context and timely feedback of information to inform the strengths and priorities of the health service. Changes were recognised and addressed immediately.Conclusions: This qualitative research framework is a useful mechanism for providing local data to inform patient-centred health system change as expressed by health users. We recommend this consumer partnership framework be embedded into existing operational structures to support the ongoing sustainability of this group.

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