Key Stakeholder Priorities for the Review and Update of the Australian Guide to Diagnosis of Fetal Alcohol Spectrum Disorder: A Qualitative Descriptive Study

Nicole Hayes, Lisa K. Akison, Sarah Goldsbury, Nicole Hewlett, Elizabeth J. Elliott, Amy Finlay-Jones, Dianne C. Shanley, Kerryn Bagley, Andi Crawford, Haydn Till, Alison Crichton, Rowena Friend, Karen M. Moritz, Raewyn Mutch, Sophie Harrington, Andrew Webster, Natasha Reid

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    Abstract

    Since the 2016 release of the Australian Guide to the Diagnosis of Fetal Alcohol Spectrum Disorder (FASD), considerable progress has been made in the identification and diagnosis of the disorder. As part of a larger process to review and update the Guide, the aim of this study was to identify review priorities from a broad range of stakeholders involved in the assessment and diagnosis of FASD. Sixty-two stakeholders, including healthcare practitioners, researchers, other specialists, individuals with cultural expertise, lived experience and consumer representatives com-pleted an online survey asking them to describe up to five priorities for the review of the Australian Guide to the Diagnosis of FASD. A total of 267 priorities were described. Content analysis of responses revealed priority areas relating to diagnostic criteria (n = 82, 30.7%), guideline content (n = 91, 34.1%), guideline dissemination (n = 15, 5.6%) and guideline implementation (n = 63, 23.6%). Other considerations included prevention and screening of FASD (n = 16, 6%). Engaging stakehold-ers in setting priorities will ensure the revised Australian Guide can be as relevant and meaningful as possible for the primary end-users and that it meets the needs of individuals with lived experience who will be most affected by the diagnosis.

    Original languageEnglish
    Article number5823
    Pages (from-to)1-20
    Number of pages20
    JournalInternational Journal of Environmental Research and Public Health
    Volume19
    Issue number10
    DOIs
    Publication statusPublished - 2 May 2022

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