Lung Cancer Stigma across the Social Network: Patient and Caregiver Perspectives

Stefano Occhipinti, Jeff Dunn, Dianne L. O'Connell, Gail Garvey, Patricia C. Valery, David Ball, Kwun M. Fong, Shalini Vinod, Suzanne Chambers

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    Abstract

    Objective: To examine the personal experiences of people with lung cancer and their caregivers and how stigma is manifested throughout a patient's social network.

    Methods: A qualitative thematic analysis of interviews with 28 patients with lung cancer and their caregivers was conducted. Telephone interviews were conducted and transcribed verbatim. Data analysis was guided by contemporary stigma theory.

    Results: Patients and caregivers reported feeling high levels of felt stigma and concomitant psychological distress in response to the diagnosis of lung cancer. Three overarching themes emerged: the nexus of lung cancer and smoking, moralization, and attacking the link between lung cancer and smoking. Stigma was inevitably linked to smoking, and this formed the hub around which the other themes were organized. Caregivers reported feeling invisible and noted a lack of support systems for families and caregivers. In addition, there was evidence that caregivers experienced stigma by association as members of the patients’ close networks. Both groups responded ambivalently to stigmatizing antismoking advertisements.

    Conclusions: The qualitative analysis demonstrated the complex interplay of the social and personal domains in the experience and outcomes of stigma in lung cancer. There is a significant potential for caregivers of patients with lung cancer to experience exacerbations of psychosocial distress as a consequence of widely shared negative views about lung cancer and its prognosis. It remains for researchers and practitioners to incorporate such complexity in addressing stigma and psychosocial distress in both patients and caregivers.

    Original languageEnglish
    Pages (from-to)1443-1453
    Number of pages11
    JournalJournal of Thoracic Oncology
    Volume13
    Issue number10
    Early online date5 Jul 2018
    DOIs
    Publication statusPublished - 1 Oct 2018

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