Parent empowerment in chronic illness

a nursing perspective

Research output: Book/ReportBookResearchpeer-review

Abstract

Parent empowerment is upheld as a creative strategy to provide a family centred approach in chronic illness care. Empowerment equips parents to voice their concerns, priorities and goals of care among service providers and find some structure to their ever changing lives. However identifying and measuring parent empowerment practices are ambiguous probably due to the subjective nature of the concept. This work discusses the nurses’ perceptions about parental struggle in chronic illness such as understanding the child’s condition, negotiating a plan of care, monitoring and managing symptoms and coping with the changed family routines. An atmosphere of trust, open communication, shared decision making, support and parental readiness to accept their child’s care leads to parent empowerment. Nurse’s role is identified as an advocate for the child and the family and, as a front-line worker who fill the gap between parent and the multidisciplinary team. This inquiry brought more conceptual clarity to parent empowerment and has empirical importance in the current, changing context of chronic disease management.
Original languageEnglish
Place of PublicationGermany
PublisherLambert Academic Publishing
Number of pages132
ISBN (Print)978-3-659-49878-7
Publication statusPublished - 2013

Fingerprint

chronic illness
empowerment
parents
nursing
nurse
child care
service provider
coping
monitoring
Disease
decision making
worker
communication
management

Cite this

Panicker, L. (2013). Parent empowerment in chronic illness: a nursing perspective. Germany: Lambert Academic Publishing.
Panicker, Leena. / Parent empowerment in chronic illness : a nursing perspective. Germany : Lambert Academic Publishing, 2013. 132 p.
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Parent empowerment in chronic illness : a nursing perspective. / Panicker, Leena.

Germany : Lambert Academic Publishing, 2013. 132 p.

Research output: Book/ReportBookResearchpeer-review

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Panicker L. Parent empowerment in chronic illness: a nursing perspective. Germany: Lambert Academic Publishing, 2013. 132 p.