Parental Perception of Quality of Life in Children with Bronchiectasis

N. Cox, C. Wilson, K. Bennett, K. Johnstone, A. Potter, A. Chang, A. Lee

    Research output: Contribution to journalMeeting Abstract

    Abstract

    Introduction/Aim: Children with acute exacerbations of bronchiectasis are known to have a poorer health‐related quality of life (HR‐QOL) compared to peers without respiratory disease. However, during the stable state, the child‐specific and the corresponding parental‐proxy HR‐QOL and the impact of bronchiectasis on the parents' psychological status are unclear. We aimed to determine the impact of bronchiectasis on (i) HR‐QOL in clinically stable children compared to age‐matched peers and (ii) the parent/caregivers' anxiety and depression.

    Methods: Children (aged 5 to 18 years) with bronchiectasis while in a stable clinical state were recruited from two Australian tertiary hospitals. The children and their parents completed the child‐specific and parent‐proxy (respectively) versions of the Pediatric QOL inventory (PedsQL), a generic HR‐QoL. Parents also completed the Hospital Anxiety and Depression scale (HADS) and the Centre for Epidemiological Studies Depression scale (CES‐D). Age‐matched control children (with no diagnosis of a respiratory condition) and their parents also completed these questionnaires.

    Results: 29 children with bronchiectasis (mean±SD FEV1 91.5±14.5% predicted, age 10±4 years, their parents and 43 age‐matched controls and their parents were enrolled. Children with bronchiectasis and their parent had significantly lower PedsQL scores compared to their peers (mean difference [MD] of raw scores 18.1 points, 95%CI 9.5 to 26.7; 24.8 points, 95%CI 16.2 to 33.4 respectively). Compared to parents of controls, parents of children with bronchiectasis were more anxious (MD 3.5 points [95%CI 1.8 to 5.2]) and more depressed according to both the HADS and CES‐D (both p<0.001).

    Conclusion: Children with bronchiectasis in the stable state have poorer HR‐QOL. Their parents report higher levels of anxiety and depression. Attention to, and strategies to improving the HR‐QoL and parental mental health are required in children with bronchiectasis.
    Original languageEnglish
    Article numberTP-115
    Pages (from-to)165-165
    Number of pages1
    JournalRespirology
    Volume23
    Issue numberS1
    DOIs
    Publication statusPublished - 14 Mar 2018

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    Cox, N., Wilson, C., Bennett, K., Johnstone, K., Potter, A., Chang, A., & Lee, A. (2018). Parental Perception of Quality of Life in Children with Bronchiectasis. Respirology, 23(S1), 165-165. [TP-115]. https://doi.org/10.1111/resp.13268