TY - JOUR
T1 - The IMPAKT study
T2 - Using qualitative research to explore the impact of end-stage kidney disease and its treatments on Aboriginal and Torres Strait Islander Australians
AU - ANDERSON, K
AU - Cunningham, Joan
AU - DEVITT, J
AU - Cass, Alan
PY - 2013
Y1 - 2013
N2 - Indigenous Australians suffer a disproportionate burden of kidney disease. Better understanding regarding how the disease and its treatments impact on indigenous patients, their families, and communities is important to provide effective services for this population. To investigate this issue, a large qualitative interview study was undertaken as part of the IMPAKT (IMProving Access to Kidney Transplants) research program. Indigenous (146) and non-indigenous (95) patients from nine hospital renal units and 17 associated dialysis satellite centers were interviewed. The study revealed that indigenous patients' experience of dialysis is strongly mediated by the social and situational circumstances of this population - specifically living in regional and remote communities, relative youth, late referral to nephrology care, language differences between patients and health providers, and low literacy. The dialysis regimen required dislocation of patients from their support networks, a situation exacerbated by pervasive miscommunication with healthcare providers, and a commonly reported sense of isolation and alienation. The implications of these findings for service delivery models are discussed. � 2013 International Society of Nephrology.
AB - Indigenous Australians suffer a disproportionate burden of kidney disease. Better understanding regarding how the disease and its treatments impact on indigenous patients, their families, and communities is important to provide effective services for this population. To investigate this issue, a large qualitative interview study was undertaken as part of the IMPAKT (IMProving Access to Kidney Transplants) research program. Indigenous (146) and non-indigenous (95) patients from nine hospital renal units and 17 associated dialysis satellite centers were interviewed. The study revealed that indigenous patients' experience of dialysis is strongly mediated by the social and situational circumstances of this population - specifically living in regional and remote communities, relative youth, late referral to nephrology care, language differences between patients and health providers, and low literacy. The dialysis regimen required dislocation of patients from their support networks, a situation exacerbated by pervasive miscommunication with healthcare providers, and a commonly reported sense of isolation and alienation. The implications of these findings for service delivery models are discussed. � 2013 International Society of Nephrology.
KW - Article
KW - end stage renal disease
KW - health care delivery
KW - health care personnel
KW - health literacy
KW - hemodialysis
KW - human
KW - Indigenous Australian
KW - kidney transplantation
KW - qualitative research
KW - renal replacement therapy
KW - semi structured interview
KW - Torres Strait Islander
UR - http://www.scopus.com/inward/record.url?scp=84912043289&partnerID=8YFLogxK
U2 - 10.1038/kisup.2013.19
DO - 10.1038/kisup.2013.19
M3 - Article
SN - 2157-1724
VL - 3
SP - 223
EP - 226
JO - Kidney International Supplements
JF - Kidney International Supplements
ER -