The IMPAKT study

using qualitative research to explore the impact of end-stage kidney disease and its treatments on aboriginal and Torres Strait Islander Australians

K ANDERSON, Joan Cunningham, J DEVITT, Alan Cass

Research output: Contribution to journalArticleResearchpeer-review

Abstract

Indigenous Australians suffer a disproportionate burden of kidney disease. Better understanding regarding how the disease and its treatments impact on indigenous patients, their families, and communities is important to provide effective services for this population. To investigate this issue, a large qualitative interview study was undertaken as part of the IMPAKT (IMProving Access to Kidney Transplants) research program. Indigenous (146) and non-indigenous (95) patients from nine hospital renal units and 17 associated dialysis satellite centers were interviewed. The study revealed that indigenous patients' experience of dialysis is strongly mediated by the social and situational circumstances of this population - specifically living in regional and remote communities, relative youth, late referral to nephrology care, language differences between patients and health providers, and low literacy. The dialysis regimen required dislocation of patients from their support networks, a situation exacerbated by pervasive miscommunication with healthcare providers, and a commonly reported sense of isolation and alienation. The implications of these findings for service delivery models are discussed. � 2013 International Society of Nephrology.
Original languageEnglish
Pages (from-to)223-226
Number of pages4
JournalKidney International Supplements
Volume3
DOIs
Publication statusPublished - 2013

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Qualitative Research
Chronic Kidney Failure
Transplants
Kidney
Dialysis
Therapeutics
Community Health Centers
Hospital Units
Nephrology
Kidney Diseases
Health Personnel
Population
Language
Referral and Consultation
Interviews
Health
Research

Cite this

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title = "The IMPAKT study: using qualitative research to explore the impact of end-stage kidney disease and its treatments on aboriginal and Torres Strait Islander Australians",
abstract = "Indigenous Australians suffer a disproportionate burden of kidney disease. Better understanding regarding how the disease and its treatments impact on indigenous patients, their families, and communities is important to provide effective services for this population. To investigate this issue, a large qualitative interview study was undertaken as part of the IMPAKT (IMProving Access to Kidney Transplants) research program. Indigenous (146) and non-indigenous (95) patients from nine hospital renal units and 17 associated dialysis satellite centers were interviewed. The study revealed that indigenous patients' experience of dialysis is strongly mediated by the social and situational circumstances of this population - specifically living in regional and remote communities, relative youth, late referral to nephrology care, language differences between patients and health providers, and low literacy. The dialysis regimen required dislocation of patients from their support networks, a situation exacerbated by pervasive miscommunication with healthcare providers, and a commonly reported sense of isolation and alienation. The implications of these findings for service delivery models are discussed. � 2013 International Society of Nephrology.",
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